10000 Hits

I just noticed the site has had over 10000 hits
I made the site hidden from search engines in march 2014 as there was nothing much going on
So only those who new the address or stumbled upon it by mistake could find it
This month I reinstated it and quickly the new views have taken the total to over 10000

I hope that the info has helped those who are suffering with this dreadful disease
and those who are caring for and connected to loved ones who have Chordoma

Operation 3/4

Operation scheduled

For November 12
I have to be up bright and early and in the hospital by 7am

The are going to go in via the left side of my head/neck

Chordoma returns

I went for my regular MRI scan a week ago. They scanned me for ages and had to do a few again because the pictures they were getting were not clear enough

Today I went to see my oncologist who advised the tumor had returned
The size is about 1cm by .5cm and they think the way forward is to remove it

I have an appointment next week with the surgeon so will see what he says and what / how they want to go forward

The Blog

Around march 2014 I stopped updating the blog as there was not a great deal to report

I was having 3 monthly MRI scans for the first year after my proton treatment and then then went to 3 scans a year this last year
After this last scan I was expecting to go for 6 month or yearly checks