Tuesday 21 December 2021

Feeling More Normal Now

Stitches are out and other than having to wear this collar feeling a bit more normal now

I have been able to sleep almost over night for the past 3 days - getting more used to wearing this collar I guess

Still a long way to go but looking forward to Christmas 



 

Monday 6 December 2021

Operation 5/6

I had a major 13hr tumour de-bulking operation on Monday
I was left in a coma for a couple of days whilst in a collar to ensure everything remained stable

I am now home
Feel very weak and drained
Its been a very tough week and will take a while to get back into the swing of things
Been a lot harder than ever before
Its really taken it out of me
Still fighting the fight
Have to wear a collar for 6 weeks My Avengers movie costume
Then they need to assess wether they need to fit fixation plates in the neck/spine
Then a course of radiation
So a very long way to go - again







Thursday 7 January 2021

UCLH MRI

No calculable change in tumour size although it has apparently changed a bit
Will know more with next MRI in 3 months

Lots of tablets to take

Drug trial ongoing