I had a meeting today with one of my surgeons and my oncologists and was told no more treatment was forthcoming for me and effectively that was the end !
I kind of expected something like this so had prepared a 3 page letter outlining ideas and supplementary treatment including second surgical opinion and alternative drug therapy
The main one being a recently publish paper an a trial of a Chemotherapy drug called Pemetrexed which has had some success with Chordoma patients
They agreed to ask for a second surgical opinion with a team from Manchester hospital
They are also going to refer me to the oncology chemotherapy team regarding Pemetrexed
