Had a Physiotherapy session today
Gave me a few exercise to try and help loosen muscles etc in neck
Saw an MRI of the tumour which was quite a shock as its bloody huge. Hence only a few little movement's given rather than a full physio session
I can feel the lump on the side of my neck and its pushing the muscles which run to top of shoulder. Thats why I have pain in both places
Need this lump removed ASAP
More Tumour Growth
Now approx 48mm x 49mm
So it has grown 1cm since last scan
The technical wording on the report
The heterogeneous T2 hyperintense patchy enhancing tumour in the left
neck, left lateral masses of the upper cervical spine, extending from the
petroclival region down to the level of C4 is unchanged in its superior
aspect at the level of the odontoid peg but continues to increase in size
At its inferior aspect. At the level of the C2 vertebral body, it has maximal transverse
dimensions of 49 x 48 mm (previously 39 x 35 mm at a similar level).
Medially, epidural tumour indents the thecal sac and minimally indents the
left side of the spinal cord. Its inferior tip is now at the level of the
C4 superior endplate (previously C3 inferior endplate)
There is tumour growth again in an area around C2/C3 on the left side
The radiation I had has not done its job unfortunately
Now in an area outside of the skull base team that I have been with from the start
Its a ENT team who are reviewing it and I will be seeing them in early June to find out what next
Its about the size of a golf ball
I have been having awful pain so have been put on a course of steroids which has helped
Two appointments
Oncology Doc and MRI
Dr OK with things since radiation - carry on the pain meds
MRI standard thing - will have to wait for results
No calculable change in tumour size although it has apparently changed a bit
Will know more with next MRI in 3 months
Lots of tablets to take
Drug trial ongoing
