This is the end of the line for this drug as is has caused damage to my kidneys
Therefore treatment has stopped
I has been very successful up until now - Shrinking the tumour and giving me a better quality of life
I will be continued to be monitored with 3 month MRIs and will look for another drug when growth of tumour occurs
Started on a chemotherapy drug Pemetrexed
I found a promising trial paper on the drug which I passed on to the hospital Drs
There are no drugs approved for Chordoma so this drug is "off label" thankfully the hospital trust agreed to pay for it
For more info on drug click below
I had a meeting today with one of my surgeons and my oncologists and was told no more treatment was forthcoming for me and effectively that was the end !
I kind of expected something like this so had prepared a 3 page letter outlining ideas and supplementary treatment including second surgical opinion and alternative drug therapy
The main one being a recently publish paper an a trial of a Chemotherapy drug called Pemetrexed which has had some success with Chordoma patients
They agreed to ask for a second surgical opinion with a team from Manchester hospital
They are also going to refer me to the oncology chemotherapy team regarding Pemetrexed
