Healing up. Looking good

The scar has been healing up ok
It is still tender to touch especially at the skull area
Desperate to have a hair cut but as I use clippers concerned I will hurt myself. Will have to go to a barber for the first time in years
Generally fell well in myself. Still get tired - I guess the more I do the more I get tired vicious - circle :)

First outing

Went out for the first time today
Julie drove me to St Ives where we had a wonder around the xmas fair and a light lunch at a cafe
Nice to get out and some very fresh cold air in my lungs

Craniotomy

Apparently I have had a craniotomy

I did not even realise that's the op I was having

I must have missed that discussion with the doc

Anyway staples are out and the scar beginning to look better

I feel pretty good generally  Still tired and have struggled to fully get flat in bed so have sleeped in the lazyBoy

I also have what feels like a blocked left ear. Although it seems like the hearing is affected I don't think it actually is. The doc could not see any issue. Maybe it's the swelling. I will see how it goes

35 Staples

I cant believe how big the surgery cut is on my head/neck
They used 35 staples on the cut to close it up
Have they never heard of keyhole surgery !

Op Time

Had the op. Under the knife for 5 hrs this time

The doc is pleased the result

Removed all they could find

10000 Hits

I just noticed the site has had over 10000 hits
I made the site hidden from search engines in march 2014 as there was nothing much going on
So only those who new the address or stumbled upon it by mistake could find it
This month I reinstated it and quickly the new views have taken the total to over 10000

I hope that the info has helped those who are suffering with this dreadful disease
and those who are caring for and connected to loved ones who have Chordoma

Operation 3/4

Operation scheduled

For November 12
I have to be up bright and early and in the hospital by 7am

The are going to go in via the left side of my head/neck

Chordoma returns

I went for my regular MRI scan a week ago. They scanned me for ages and had to do a few again because the pictures they were getting were not clear enough

Today I went to see my oncologist who advised the tumor had returned
The size is about 1cm by .5cm and they think the way forward is to remove it

I have an appointment next week with the surgeon so will see what he says and what / how they want to go forward

The Blog

Around march 2014 I stopped updating the blog as there was not a great deal to report

I was having 3 monthly MRI scans for the first year after my proton treatment and then then went to 3 scans a year this last year
After this last scan I was expecting to go for 6 month or yearly checks