MRI scan shows new growth in the C4 area
I have discussed with my Dr another drug Pembrolizumab which he will try and get
Shout out to a friend Vince who regularly checks my blog for updates - Vince I will try and update more often !
I have written this on 21/01/2026 but as the info relates to October last year have put published date as around then to keep updates in correct order
MRI scans Sep 24, Jan 25, Apr 25, Jul 25
All have showed stable appearance even without any treatment
I have also felt very well and have had a hugely improved quality of life over the past yr or so
I have also been able to reduced pain drug intake considerably
So the Pemetrexed chemotherapy has damaged my kidney but has also reduced and stopped the tumour growth for a long time
This below was my original post that I put up left here Just for info
Can't believe how long it is since I last posted
A fair bit has changed since then
I have been on a drug or at least I was on a drug for about eight months which has had a good effect at stopping tumour growth. Unfortunately the drug did some damage to my kidneys so I had to stop.
Even so since stopping almost a year ago, there has been no further growth so far
So when you consider that I was told that no further treatment was possible, having knowledge and info on what's going on in the world of Chordoma made a huge difference
I was able to get them to look at other options and refer me to the oncology department.
I requested a specific drug which has clearly helped, albeit with it causing other issues
Waiting for my next scan in October and fingers crossed there's still no further growth
