MRI scan shows new growth in the C4 area
I have discussed with my Dr another drug Pembrolizumab which he will try and get
Shout out to a friend Vince who regularly checks my blog for updates - Vince I will try and update more often !
I have written this on 21/01/2026 but as the info relates to October last year have put published date as around then to keep updates in correct order
Can't believe how long it is since I last posted
A fair bit has changed since then
I have been on a drug or at least I was on a drug for about eight months which has had a good effect at stopping tumour growth. Unfortunately the drug did some damage to my kidneys so I had to stop.
Even so since stopping almost a year ago, there has been no further growth so far
So when you consider that I was told that no further treatment was possible, having knowledge and info on what's going on in the world of Chordoma made a huge difference
I was able to get them to look at other options and refer me to the oncology department.
I requested a specific drug which has clearly helped, albeit with it causing other issues
Waiting for my next scan in October and fingers crossed there's still no further growth
