Gemcitabine

 I started this chemotherapy drug today. 

There is not a huge amount of data on how effective this drug is
Hopefully it will do better than the last drug

For more info on drug click below
Gemcitabine

Nivolumab

 I started taking this immunotherapy drug last year about 3 months ago

MRI report of a few weeks ago reports a 15mm growth and more alarming its again pressing on the spinal chord

So the drug has had little or no effect on tumour control

This treatment is on trial with stereotactic radiosurgery (SRS) in USA
I could not find any UK way of having SRS with the Nivolumab so had to have the drug on its own 

My Dr tried to get Pembrolizumab a drug that has been recorded as beneficial to some chordoma patients
NHS England panel refused to allow it to be given to me.

I read the panel screening document detailing the refusal and it was for me impossible to understand their reason for refusal - The drug is very expensive - maybe that is the real reason !?

Nivolumab is a drug that acts a a tumour a bit like Pembrolizumab but as Pembrolizumab has shown to be more effective than Nivolumab it has not had as much research done on it

For more info on drug click below

Nivolumab