Since my last MRI there has been a definite increase in size of the "blob" that has been seen on previous MRI scans
That means that this "blob" is Chordoma and not water as they (and I) had hoped
They have booked me in a week from now to see the surgeon in the skull base clinic
There proposal is resection of the cancer if possible and if not fully possible to move is as far away from the brain stem as possible
This will give an apparent clinical advantage when they carry out more radiation
This radiation is likely to be normal radiation rather than proton as
1. They don't believe I will get funding
2. If I did get funding the proton centre may not want to do further radiation
We will cross that bridge after successful surgery
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