The MRI show more growth 15mm in 3 months
There is slight compression of the spinal cord at c3
I have been told yet again that my outlook is poor. My Dr thinks that the currant treatments will not work. He has no other treatment that he can think of that will benefit me
He has therefore as well as starting me on another drug he has referred me to the end of life team at our local hospice Arthur Rank Hospice. In his letter to be he found it difficult to give timeline's but wrote 6 to 12 months
I was told all this before when I was under the skull base team - I had lots of ideas and possible interactions that I put to the team - a 3 page letter full of ideas - as a result I was transferred to the oncology team and was fortunate to have had a drug financed by the local hospital trust - this gave me a new lease of life
Two and a half years later and this time I have nothing to offer that can be given to me in the UK
I have written to a few specialist's with the hope of being able to get drugs that are being used in the USA and are seemingly effective to some point - I have found no where in UK to get these drugs
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